Links and Resources for Dementia Caregivers

December 19, 2014

Following are useful links and resources to help you in your quest for additional information about dementia and providing care for individuals with memory loss. These resources are not connected with Emerald Crest, and Emerald Crest is not responsible for the information contained in them. We offer them simply as a starting place for your research.

Associations on Aging

Alzheimer’s Association www.alz.org

Alzheimer’s Association of Minnesota-North Dakota www.alzmndak.org

CaregiverMN.org www.caregivermn.org

Hospice Minnesota www.mnhospice.org

Minnesota Health and Housing Alliance www.mhha.com

National Council on Aging www.ncoa.org

Medical Resources

Mayo Clinic www.mayoclinic.com

Noran Clinic www.noranclinic.com

Tools/Page

Choosing and Financing Memory Care: Checklist and Questions.
A helpful set of tools for anyone comparing memory care options.

Caregiver Options, Thinking About Placement.
A facility questionnaire and helpful topics to begin the placement process.

Senior Housing and Care Definitions.
A list of senior care and memory care definitions.

Phone Numbers

Alzheimer’s Helpline 1-800-232-0851

Senior Linkage Line 1-800-333-2433

Cognitive Care Coaches 952-239-3657

Books

  • “Alzheimer’s Disease: The Family Journey,” Wayne Caron, Ph.D.; James Pattee, M.D.; Orlo Otteson, 2001.
  • “As We Grow Old: How Adult Children and Their Parents Can Face Aging with Candor and Grace,” Ruth Fowler, 1998.
  • “Coping with Your Difficult Older Parent: A Guide for Stressed-Out Children,” Grace Lebow and Barbara Kane, 1999.
  • “Negotiating the Elder Care Maze,” Mary T. Parmley, 1997.
  • “Partial View: An Alzheimer’s Journal,” Cary Smith Henderson, et. al.,1998.
  • “The Complete Guide to Alzheimer’s-Proofing Your Home,” Mark Warner, 2000.
  • “The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer’s Disease, Related Dementing Illnesses, and Memory Loss in Later Life,” Nancy Mace and Peter Rabins, 2001.
  • “When Someone You Love Has Alzheimer’s: The Caregiver’s Journey,” Earl Grollman, et. al., 1997.
  • “Where Can Mom Live?: A Family Guide to Living Arrangements for Elderly Parents,” Vivian Carlin and Ruth Mansberg, 1998.


For the latest in clinical research, log on to the Alzheimer Research Forum at www.alzforum.org.

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Quotes

Approximately four months ago, my sister and I made the decision to move our mom to a memory care facility. This decision was especially difficult for her daughter Diane. Mom had lived with Diane for many years, and Diane was her primary caregiver. With Diane's job changing, she was no longer able to provide the increased supervision that mom needed. Finding Emerald Crest Shakopee has been such a blessing for everyone! The caring staff, the activities provided, and the Chaplain Services are so awesome. Everyone makes our loved one feel so special and valued. Our mom enjoys the music, and Chaplain Arlen's weekly visits. The family appreciates his updates on our mom and reassures us that all is well. My mom has adjusted well to her new home! This is due in large part to the wonderful care she receives.  Emerald Crest  Shakopee has been such a blessing and for this we are grateful.

— Diane, daughter of resident

Quotes