Caring for Yourself as a Caregiver

December 19, 2014

As anyone who has ever cared for another individual knows, caregiving can be a full-time job. When caring for someone with memory loss, the duties can be constant, from assisting with daily hygiene, providing meals and medications to transporting an individual to scheduled appointments, your life’s work can become the care of your loved one. 

But who is taking care of you? In order to be a successful caregiver, you need to take care of yourself. Neglecting your own physical, emotional and spiritual needs can affect your health and, in turn, affect your loved one.

The Family Caregiver Support Project, Northwest Regional Council/Area Agency on Aging, offers the following Caregiver Bill of Rights:

  • To take care of myself – to rest when I’m tired, to eat well and to take breaks from caregiving when I need them.
  • To recognize the limits of my own endurance and strength.
  • To seek help from family, involved parties and the community at large.
  • To socialize, maintain my interests and do the things I enjoy.
  • To acknowledge my feelings, whether positive or negative, including frustration, anger and depression, and to express them constructively.
  • To take pride in the valuable work I do, and to applaud the courage and inventiveness it takes to meet the needs of my care receiver.

Asking for help can be difficult, but you do not have to do it alone. For the free online guide “Caring with Confidence; A Self-Help Guide for Your Caregiving Journey,” go to: www.tcaging.org/c_guide.htm. Also, check the resources listed below:

Your Support Network

Caring for another individual is a lonely, often emotional task. You may feel anger, fear, sadness, fatigue and love all at the same time. It’s important to build a support network for yourself where you can share your worries, learn from those who have dealt with similar situations and just know that there are others standing beside you as you journey through this new territory. Most communities have a wide variety of caregiver support groups. Check with the Alzheimer’s Association at www.alz.org; the Minnesota-North Dakota chapter of the Alzheimer’s Association at www.alzmndak.org; local clergy or the social service department of local hospitals. And don’t forget to ask others. Sometimes word-of-mouth is the best source of caregiver support groups.

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High on our list for a place for our Mom was connection to the church, closeness to her church home, Gethsemane Lutheran, and a private room with her own phone line! Mom was not the kind to share a room. Her opinions were strongly held and vocally shared. We loved that about her, but realized that another might not. Though the cooking was not to her liking ("they never met an onion") we and she realized that residents have many dietary needs. She ate dessert first. The staff, however, allowed us to buy Grape Nuts to offer when she showed up early for breakfast. We endured COVID without Mom, the former TB patient, getting it. When I had other care concerns, staff addressed those at once. It was a good place for my Mom. The Chaplain even showed up wearing a tee shirt with her photo and the phrase "Valedictorian" a fact Mom managed to mention to every new care giver.

— Carol, daughter of resident

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